Saturday, March 04, 2006

Sleepy Boy

Gus was sleepy today when we visited at the NICU. He was under the biliruben lights again and wearing his "sunglasses" as you will see in the picture below. I was able to hold him for a few seconds, just lifting him up in my hands as the nurse changed out the blankets under him. Jill and I have each been wearing one of his little blankets under our shirts so it gets our smell on it and we can place it in the isolette with him. They say this will help him identify our smells with comfort.
Here is Gus, still with the standard ventilator and shades on. His mouth moves a lot and has begun to stick out his tongue. We tried to help him suck on the pacifier again, but he was content without it today.
Jill held his hand for a long time - it made both of them feel good.
Gus was moving around a lot today - the nurses tell us it is because his nervous system is so immature. Little flinches and stretches are normal, probably similar to how he moved around inside Jill.
Here is a close-up of Gus' little heart monitor with puppies on it...
Gus received the first dose of three doses in his second round of endomethicin to close the backflow valve in his heart. The clinical term for what he has is called Patent Ductus Arteriosus (PDA). The "Patent" means it is still open but it needs to be closed. All babies are born with this duct open because Mom had been taking care of the blood flow and cleaning. The reflex that causes it to close in full-term babies is under-developed in preemies and often needs a little help. Also, the endomethicin is sort of hard on the kidneys and they only administer it so long before they decide to do surgery. Please keep praying that it closes with this treatment so we can avoid the surgery that would close it with a clip. Gus gained an ounce today - back up to 1 lb 7.75 oz after his predicted post-birth weight loss. YEAH GUS!

Today was sort of a hard day for Jill too. The emotions of the week, exhaustion and the reality of Gus' long journey began to settle in. Her spirits are good but the difficulties are still real.

Thanks for all your great comments - they are very encouraging to us!
Gregg, Jill and Gus

3 comments:

Anonymous said...

Hey, Gus! You and your parents were prayed for a my church this morning. I bet there are hundreds of congregatins that did the same. I hope your mom and dad are being a little sleepy like you. Thanks for the reminder that we all need to take a nap every day. Barb

Anonymous said...

Hi Jill, Gregg and Gus,

First off - congratulations!!! And a big welcome to Gus. His "sunglasses" look awfully familiar to our son Tyler. We referred to them as "spa" glasses though since that bilirubin light is so warm and glowing.

What a wonderful little boy you have there. He's no doubt getting the absolute best care around. And let's not forget he's got two very loving parents and it sounds like a whole host of people praying for him!

A co-worker of mine's son was also a preemie, born the height of a coke can. And now he's a tall lad who just graduated from college. I know from all the stories she's told me over the years that these few weeks can be emotionally and physically draining, but we're all here to support you.

Gus looks like quite the dashing young fellow - especially with those open eyes. When the time comes, I'm sure Tyler will be happy to have a playmate close in age!

Keeping you all in our thoughts and prayers...

Anonymous said...

Jill thank you so much for sharing this with me.What a gorgeous baby.What a blessing, that you most definately deserve.Its amazing that you met me as being my client and how you hold a special place in my heart.God bless you and your entire family for this journey you have all accomplished.God bless you Gus! Tracy Johnson*