The pulmonoligist reduced his diuretic dose by half and is eager to take him completely off of it and caffeine by his next visit. One month off caffeine with good results and we will be able to shed the pulse/respiration monitor as well! Gus' eye exams have gone really well too - his right eye is catching up so we are now on every 2 week exams instead of every week.
The addition of Prevacid to Gus' medication regime has made a great difference. After about two weeks on this medication we can really tell a difference in his ability to keep food down. Lots less throw-up and reflux after feeding. He was 8 lb 6 oz last week so we expect he is near 9 lb at this time.
Here are some pictures from Gus' first days in this world - I had just returned home from my seminary transcultural trip in Mexico and was not using the digital camera at that time. It took all 5 months to finish off this roll of film in my Leica and have it developed... I think you will agree that these are some moving photos from February 26 and 27, 2006.
 Sweet Jill was able to eke out a smile the day after her delivery ordeal. She is so gracious an beautiful - even in the lovely hospital gown. |
 Nurse Sherri was Gus' receiving nurse. She was the nurse who did all the pre-care on Gus - getting him wired up, respirator in and IV lines in place so he could merely stay alive his first few hours of life. Jill was wheeled in on her delivery gurney to see Gus. What a miracle to see these pictures again for the first time... Sherri stayed on as Gus' primary evening nurse his entire hospital stay - such a blessing! Another picture shows Jill touching Gus' hand - she had no recollection of touching him in his first days so having these pictures available is certainly an encouragement. |
 Nurse Lindsay was with Jill and me during delivery. She was the one who made sure Gus was transported into the NICU right after he was born. Lindsay also was a regular with Gus - it is amazing how deeply committed each nurse and doctor was to our individual case. |
 Here is the first picture of Gus through his portal. You can see the variety of tubes - breathing tube, IV line, heart monitor, feeding tube - all in place. This was probably taken in the wee hours of 2/27. |
 Nurse Susie taking care of Gus and being so patient with us... Again, another caregiver who stayed with Gus through his entire hospital stay and became a good friend along the way. Susie lives in our community and has lots of ties with other friends so it seems fateful that we got to know her so well. |
Not much else to report. Gus is eating more and more - about 3.5 oz every 3 hours. I'm still staying home with Gus - my full-time job doesn't start until September 1 so this is a great experience. I have A LOT of respect for parents who stay at home full-time having now experienced it myself. Jill has been back to work for a few months now. She works at home so it is really nice that she can take her breaks to be with Gus and me.
Enjoying the little things,
Gregg, Jill and Gus
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